To update everyone that doesn't already know, our little boy Jonas Isaiah was born on October 21, 2011. He weighs 5 pounds 12 ounces and is 18 3/4" long. He was born 6 weeks early via emergency C-Section. He is in the NICU and is so little, but doing better than the doctors anticipated.
So here is the story of how we got where we are now. We had a routine Doctor's visit on Wednesday. They did an ultrasound and discovered fluid outside of his lungs. The doctor was concerned so he sent us to the hospital so the neonatologists could take a look. They were also concerned and gave me steroid shots to help baby's lungs develop faster so that if need be to deliver early, he wouldn't have any other lung problems. I came back on Thursday for the second shot of steroids and they made another appointment for Friday to take a second look at the little boy's lungs. We came back to the hospital on Friday not anticipating to be having a baby that day. They measured the amount of fluid around his lungs and discovered that there was more than on Wednesday. The doctors all spoke together and decided that it was best to deliver him. It was decided that his lungs wouldn't get the chance to develop fully if he went to full term. So they walked us across the hall and started prepping me for an emergency C-Section to deliver him and get the fluid off his lungs.
He has what they call Congenital Chylothorax. Which basically means that he has this limphatic fluid in his chest. They have drained off a good amount and are still getting a little, but it is less and less each day. He had an X-Ray this morning and they said there was still a little fluid in there, but that it was getting better. We go down and see him everyday. He is still on a ventilator and has chest tubes in his sides, so we can't hold him yet, but we get to see him and hold his little hands and rub his little head and tickle his little feet. It is really hard to see him hooked up to all those machines and not be able to hold him, but I know that he is in good hands and getting better everyday, but it is still hard for us.
The hardest part is that I am going home from the hospital tomorrow and my baby Jonas isn't coming with me...that is the hardest part of all of this. We hadn't planned on having him so soon first off, and now that he is here I can't even hold my baby and take care of him and take him home with me. Faith. Faith is what I need right now. Faith and comfort. I have faith that he will just as fine when I'm not in the hospital as he is when I've been here. It's just that I won't be able to just walk down the hall and see him whenever I want to.
This is really all that we know now and we will update as soon as we know more and we will hopefully get some pictures of him up soon to announce him to the world. :)
Hey Aubrey, Glad you are doing okay. Hang in there! Prayers coming your way for your sweet little baby. Let me know if we can do anything for you.
ReplyDeleteAubrey, I'm so sorry to hear about all the hard things that have been going on! I'm glad that Jonas is getting better. I'm sure everything will be just fine. Jacob had to be in the NICU for a little bit after he was born too, so I have a little understanding of what you're going through. It will all be worth it. We'll keep you guys in our prayers and thoughts. Please let us know if there is anything else we can do!
ReplyDeleteAubrey girl I got you and your baby boy in my prayers and they are about to make it to the temples! Faith will get you though! I love you so much. I wish I could see your little guy right now :)
ReplyDeleteSorry this is Tara on my mommas account...
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ReplyDeleteAubrey if it makes you feel any better I was born 2 months premature! And I to had to stay in the hospital as well. Just keep having faith! I'll send some prayers your way!! Keep being wonderful!!
ReplyDeleteMadi